Lucy

For all of you who are not on Facebook. Things with Lucy in the last few months have gotten difficult. Her therapists are concerned because one day she can do everything they want and more and the next she is totally spaced out and can't do anything. We spoke to her neurologist at the beginning of September about this and he wanted to up her medication and then schedule her for a Video EEG in December. I told him that we had already done this and seen no improvement but he wanted to try it again. So we up'd the meds and I was to check back with him in 6 weeks to see how she was doing and maybe up the time for the EEG. I called him last Wednesday and told them that where we had not seen much of the spacing out....we HAD seen a change in Lucy's behavior. She turned into a very irritable angry girl with numerous fits during the day where she is screaming and crying at the top of her lungs for 1/2- 1 hour at a time. They stated that those were just side-affects of the meds and that they didn't have an opening any sooner for the EEG. The next day Thursday...Lucy was again spaced out in therapy and couldn't complete her tasks and the next few days...we saw the spacing out occuring more often. On Saturday night Lucy had a siezure which hadn't happened since last February. On Monday morning I called her neurologist and told them what happened and again...as they had in February...they doubted my word that this was a siezure. They called me back at the end of the day and told me that the Doctor wanted us to up the med's again. I said..."we just up'd them and she had a siezure...doesn't he want to see her?"...the nurse responded with "well she has a video EEG scheduled for Dec 6th." Needless to say....I hung up the phone and decided I was done with that Doctor and I needed to get Lucy better care...to a physician who both remembered and cared about her case....to someone who wouldn't want Lucy's brain cells to burn for 8 more weeks....someone who cared if the medicine was really working or not....so I did some research and came across Cincinnati Childrens. They are a highly accredited hospital with a division of Ped's neurology at the cutting edge. THey have 15-20 Pediatric Neurology Physicians all specializing in different aspects of neurology. We have an appointment with them on Monday morning. We are seeing a Pediatric Neurologist specializing in Epilepsy. PRAISE GOD!!!! I feel like I can hope again!!! Please pray for us as we work on making arrangements for the kids..and that God gives us the wisdom we need....and the physicians an interest in Lucy's case and most of all pray for answers and healing!!! Thank you!!