Holy Cow!! It is SOOOOOOO windy today! My front window...that I officially broke the storm window out of while cleaning it this summer is rattleing and I think it might just break out and fly away! I am trying to avoid going outside at all costs...but I may have to walk to the mailbox...and to the barn to shut the door that blew open last night! MAN!! It hasn't been this windy around here in a LONG time!
We've had quite a busy week so far....for us...Friday and Sat Keith and I went Christmas Shopping. We are almost done! Whew!! It was really busy while we were there....I stood in a line at Kohls that wrapped all the way to the back of the store!! Luckily it went really fast but when I got there I thought...do I really want to be shopping here? Anyway Sunday was our official day to teach Sunday School (the whole 13 4 year olds in a shoe box thing)....quite stressful but they were actually all well behaved this time! We had a lot of fun with them...some of them are just adorable and even though the room is WAY too small we managed to keep them all focused and entertained for the hour and a half that we had them. Monday was Lucy's therapy day....which we got a GREAT report...I don't remember if I talked about our unexpected blessing last week but Dr Julie Miller...who we were going to have to wait 6 weeks to see...called us unexpectedly on Thursday and said she had a cancellation and wondered if we could come see her at 1 that day....we rushed around....praised God and went...SHE WAS AWESOME....she spent 1 and 1/2 hours in the room with us...yeah....totally unheard of for Doc's and she observed Lucy and did different activities with her...she tickled her and had her jump and run...watched her eye movements and hand movements....AWESOME....she actually TOOK TIME to see that there was something up with Lucy and she (although she's been diagnosed with Lymphoma and is going to be undergoing chemo) took a real interest in Lucy and wants to help her ALOT...she even stated..."I'm going to be going through some tough stuff the next few weeks but I don't want Lucy to fall through the cracks...we need to find out what is going on with her...if I haven't called you back in 4 weeks...call my office and they'll know how to get ahold of me"...Yeah...any doctor that is willing to think of your child while undergoing crap like chemo shows the character of her heart and her willingness to help....WE LOVED HER!!! She ordered PT, and Speech therapy so our lives are about to get really hectic. She also ordered orthotics for Lucy which cost...get thsi $400.00 a pair and are only good for as long as the foot stays the same size...luckily insurance will pay but HOLY COW!!! Anyway those will help her with her stability and balance issues and coordination. She also asked that we get Lucy back into dance or gymnastics or karate to help with her coordination. So between going to Toledo possibly 2 times a week and mixing in Dance or something and doctors appointments with like 4 different docs we are going to be busy...but the good news is Lucy is improving in therapy and meeting her 3 month goals..she is able to stick out her tongue now...not up but down and out which is HUGE for her. She is also getting much sturdier in balence and able to climb and swing better without falling so much! We will probably be going through some genetics testing in the next few weeks also which might help answer some of our questions about the "whys" of everything. Lucy is also starting to have more of a body awareness....so that will also help her. She has some Apraxia which is when the brain knows what it wants to do but can't get the fingers/mouth to do it fast...anyway that's why she gets so frustrated and takes time to do things...the Doctor told us...she's a beautiful girl who's doing AWESOME with her uncooperative body...but we can help her do better! GREAT NEWS!! Anyway...such good news....
So anyway last night we had Gideon's Christmas Concert. He was so cute singing on the stage...although the girls were moving THE WHOLE TIME...so it was hard to listen to all the grades sing but it was fun...and when we left the school it was snowing...perfect night for a Christmas concert. So that's an update on our busy lives...Today we are doing laundry to catch up and starting to make some Christmas cookies (to freeze)...because.....THE PUPPY COMES SAT!!!!!! Wish us good luck!!!! Hope all's well!!
No comments:
Post a Comment